Useful links

Haemophilia Societies

The Haemophilia Societywww.haemophilia.org.uk

The Irish Haemophilia Societywww.Haemophilia.ie

The World Federation of Hemophiliawww.WFH.org

The Haemophilia Alliancewww.HaemophiliaAlliance.org.uk

Los Bleedos Internationalwww.Los-Bleedos.net

Other useful sites

ClinicalTrials.govwww.ClinicalTrials.gov ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world.

Young Bloods®www.YoungBloods.org.uk If you have a bleeding disorder like haemophilia or von Willebrand's or you're a carrier or have a parent or brother or sister with one of these things then this is the place to go for fun and information.

Medic Alert®www.MedicAlert.org.uk MedicAlert® is a registered charity providing an identification system for individuals with medical conditions in the form of bracelets or necklets supported by a 24 hour emergency telephone service.

Circumcision Londonwww.CircumcisionLondon.co.uk Circumcision In Factor XI Deficient Infants - Circumcision in London

Sports and fitness

Factor Fitnesswww.FactorFitness.co.uk Factor Fitness from Bayer HealthCare focuses on sports and fitness for people with Haemophilia A. It contains comprehensive information on sports, exercise, nutrition and the maintenance of healthy joints.

Food Fitnesswww.FoodFitness.org.uk Food fitness is a healthy lifestyle initiative with a unique dual approach: promoting enjoyable, healthy eating combined with increased moderate physical activity.

Find a Dentistwww.NHS.uk

Travelling abroad

Worldwide list of Haemophilia Centreswww.WFH.org/index.asp?lang=EN

Vaccinationswww.FitForTravel.scot.nhs.uk

NB If you have Haemophilia A you should not have intramuscular injections.

General Travel Advice from the Foreign and Commonwealth Officewww.FCO.gov.uk/travel

 

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