Understanding haemophilia
Patient information
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Summary of Product Characteristics Prescribing Information Patient Information LeafletHaemophilia has been with us for centuries . . . and remained a mystery for centuries. Haemophilia was first noted when baby boys had bleeding problems after circumcision. It was first seen that this problem appeared to run in families, and then discovered that it was mothers who passed it on.
In the 1800s haemophilia affected many members of the royal families of England, Spain, Germany and Russia. Those affected were direct descendants of Queen Victoria, the first known haemophilia carrier in her family.
By the beginning of the 20th century, scientists had worked out that haemophilia was due to a problem in the way that blood clots, but effective treatment using blood products only became available in the early 1970s. And today, the process of discovery still goes on, improving treatments, care and quality of life.
The history of haemophilia in the royal families of Europe
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